A week or two ago I took the kids up to L.A.to visit my grandpa and Jordan's little friend, Devany had an appt there so we met for coffee. I first met Shannon, Devany's mom, online. We both are members of a Yahoo group for cleft affected kids/adults and their parents/caretakers. Shannon said that her daughter's eye was also affected and since it's so rare I posted a response letting her know that Jordan's eye was also affected by her clefting. We talked on the phone for such a long time and have emailed since then. It was great getting to meet Shannon, her husband Henry and their little Devany. They live in Bakersfield so when Devany was born she had to be airlifted to UCLA because her facial cleft was so severe it was interrupting her vision and her airway. I think her mom told me she has had six surgeries and she is only 2! (Is that correct Shannon? You can post a comment if I have it wrong)
I'm so thankful that God has brought us together. I hope that Jordan, Tessa, Kylie, Devany, and any other little friends we meet along the way, can be friends for the rest of their lives. I hope they can share what God is doing in their lives and those around them through their trials. I hope they can struggle through their trials encouraging each other in God's sovereignty over their lives and His plan for them. I especially hope that through their unique situation they can come to a place of realizing their need for a savior in this fallen world.
Thanks Tessa, Kylie, Devany and others we've met and connected with for being our friends and for sharing this experience with us!!!! We love you and are so thankful for you!!!!