Saturday, March 28, 2009
She now has a name (and has had the same name for 2 1/2 years) so it seems fitting to either change the blog to her name or come up with something more clever...
I consider this blog not just a place to update family and friends about Jordan's progress but also a way to post my thoughts and things going on in our family.
Any ideas? Suggestions??
Will you guys post a suggestion for a name or a direction to go with the new name? Post in the comments section if you have a minute.
Thanks! :) :)
Here's a picture of Jordan with her last balloon bouquet when she had her surgery on her foot. I thought I lost this picture but found it today on my camera so I wanted to post it.
For a quick update -
Both kids are doing so well tonight.
Jordan has been fine since Thursday but Noah seemed to be getting worse yesterday. By last night he was so lethargic and just laying on the couch, sleeping. He had a fever of almost 102. The doctor said not to call unless he had a fever of 102 or higher so I didn't call but that paired with a weird cough thing he kept doing was making me nervous. He woke up much better this morning (he and I slept until almost 9:00). We stayed home all day, resting and then he slept for over three hours during naptime (I tried three times to get him up). By tonight he is suddenly back to his old self. He ate food for the first time since Wednesday. He had soft mac and cheese and a popscicle and finally took a bath. He was playing around with Shannon before bed and really seems to be doing great. I'm so glad. Because he's doing so well tonight we're taking the kids to church tomorrow. We have a ministry fair so if he's not doing well in the morning Shan can take him to the car to watch a video while I work at the tables. We are dying to get back to church! With three surgeries (four including Noah's) in five months we've missed a lot of things, Church being first on our priority list. I'm looking forward to a time with no surgeries, no recovery, no pre-ops and less therapy. This summer should be really great.
Friday, March 27, 2009
Jordan is doing fine still, of course.
Noah had a rough afternoon. He really needs his pain medicine (Vicodin) right on schedule or even a bit before and he isn't eating anything. He is only drinking Sprite. Today he finally had a popscicle but his hands were shaking so much. Tonight he has a fever and he fell asleep on the couch for an hour and a half. His fever is only100.5 so it's just a low-grade fever which is typical after surgery. I'm so lame - I forgot that I was supposed to be giving him an antibiotic so I hope I haven't caused any problems with him not getting it.
He's sleeping in our bed tonight so I don't have to get up to give him his medicine and so that we can hear him when he wakes up. Poor baby.
We're hoping that by tomorrow night or Monday he'll have turned a corner and be more like himself.
Thursday, March 26, 2009
Noah wanted this truck with him today. He informed me this morning that he could only take the one truck because he didn't have enough hands to carry more than one toy. :)
Shannon took Jordan home so she didn't have to hang out the four hours after his surgery and also so she didn't have to see him after the anesthesia. Noah got to ride in a wheelchair just like his sister gets to. Although subdued he was happy to be in a wheelchair like Sissy.
Friday, March 20, 2009
Jordan will have ear tubes put in. It's relatively simple and quick with VERY little recovery time.
Noah will have his tonsils and adenoids removed. This is a fairly routine surgery with A LOT of recovery time. Thankfully the doctor offered a newer procedure for Noah. Instead of removing the entire tonsil he will cut them back as far as he can. There is a chance they will enlarge again later but the recovery is much easier and MUCH less painful. We opted for this since he's so young. We can deal with the full removal when he's older IF needed.
Jordan is set for 7 a.m. and Noah for 7:30. They'll be next to each other in the pre-op and recovery. It'll be weird since Noah usually comforts Jordan. This time they'll both need comforting. This makes me so thankful for Noah's health in light of Jordan's medical issues. The thought of caring for two uncomfortable kids, the logistics of it all and also double the cost of surgery seems like a lot to handle more than once. I don't know how our friends with triplets have handled all their special needs. I have SUCH sympathy for them.
Also you may have noticed the link on the right side of the blog...Pray for Stellan...this is a fellow blogging mom I follow. Her son has some pretty decent heart issues and could use prayer. Click on the link for Stellan, read her blog and pray.
I'll update the blog tomorrow afternoon.
Tuesday, March 17, 2009
Here's the view with the pin in - that's the way it currently is.
Thursday, March 12, 2009
For some reason my posts got so out of order...bummer. They're backwards by order of the time they happened. Here's one more video and a little note letting you know to scroll down to see today's update on Jordan's doctor's appt with pictures of her new thumb.
Thanks for checking in!
Noah digging for dinosaur bones at the science center - yes those are goggles. Cute!
Jordan didn't love the museum as much as Noah because it was harder for her to really do the hands on stuff and she's a bit young for it but she did like a few things.
Noah LOVED the Air and Space Museum. He totally got into the space section and now is the proud owner of two toy space shuttles, thanks to Gma. Jordan picked a bouncy ball but I picked out a book about Amelia Earhart and the world telling her she couldn't do things all the while she proved them wrong. Someday Jordan will appreciate it I hope.
So the doctor was hesitant to leave the cast off her leg. He would've like to put another one back on but I couldn't bear it. When I told him she had a leg brace she wears all the time he was relieved and said because of that he would feel good about leaving the cast off. He said to be very careful of her leg (no jumping off the couch) but that she should be fine walking. She wouldn't walk in the office (no surprise) but thankfully is already walking all over the place.
This surgery/recovery has been unusually hard for me and I think it's because the surgeries have been back to back - five surgeries in 28 months. I know families who have to get their kids through 5 surgeries in two months but this is still a lot for me. I am really looking forward to next spring - very little therapy by then, if any, and no more surgeries until Jordan's five or so (she'll have one more at three years old). We can be a normal family with our focus on typical fun things and Jordan can have the hard work behind her.